I am way overdue updating this blog!! I did hear back from Cailyn’s oncologist after she had a chance to sit down with the neuro-radiologist and review Cailyn’s scans. She confirmed that the tumour appears stable since the November MRI but shared that, with the progression that has occurred over the last year, Cailyn will […]
Bottom-line, the MRI report says that Cailyn’s tumour has not grown noticeably!! With everything leading up to this, we are very surprised but really happy that we don’t have to turn around and head back to London. Unfortunately, we also have this feeling “I sure hope that there really isn’t growth.” I’ve talked about it […]
This is an overdue update. Rather than writing about my intense conversation with Cailyn last Friday, I was trying to process it and figure out what I needed to do… more on that later. Then, Monday arrives and brings with it some interesting symptoms. My first thought was that the discomfort she was feeling […]
You know… when there’s an elephant in the room, it’s hard to think about anything else. Just when you’re enjoying holiday cheer with people you love, you get smacked in the head with his trunk or you get squashed against the wall with his backside. I’m so thankful that the many special moments we’re experiencing […]
It’s that time of year. A time for giving and a time to cherish moments with family and friends. I am so thankful that our blessings are many and our needs are few… there are many who can’t say the same. The girls are thrilled that the only things that are actually planned over […]
One might think, in the absence of active treatment, that life goes on as normal. There definitely are normal components to my week that can capture and hold my attention. Consuming a huge chunk of my energy, though, is a constant and undeniable awareness of this latest addition to Cailyn’s journey. This awareness colours everything… adding intensity to […]
Waiting for further insight into the latest growth in Cailyn’s tumour has been a surreal experience. It feels like we’re in the eye of a storm, waiting for the wind and rain to arrive. Although the timing of this calm has been appreciated – including a long week-end to celebrate Thanksgiving with family and friends – my awareness that a […]
Saturday was a full day! It started at 6:30am and ended after midnight when we arrived home from our late-night celebration with ice-cream cake. It was a day for celebrating a special birthday and experiencing the transformative magic of “team-play”. First and foremost, Lauryn, my not-so-little girl, turned 12 on Saturday. The last 12 years […]