A little over a week ago, I participated in a care-giver luncheon, hosted by BrainWAVE, a pediatric brain tumour program created by the Brain Tumour Foundation of Canada. This type of event helps care-givers like myself to connect with other care-givers walking along a similar path. It is a very special experience for us attendees […]
This was a weekend of teams for me. I spent time with my extended family to celebrate 3 birthdays (mine included); I watched Lauryn’s 12U volleyball team play 7 matches at the Ontario 13U Provincials; and, I hung out with the volleyball parents. I love teams! I always have. We encounter teams all the way through our lives, from family […]
Cailyn’s Latest Cast Cailyn had her post-surgical follow-up and cast change yesterday. Having never gone down this path before, I really didn’t know what to expect… I was definitely nervous about seeing all of the incisions!! When we first sat down in the examination room, I noticed x-rays posted on the screen. In the x-ray, I […]
Today has been a good day. Cailyn returned to school this morning and we couldn’t have asked for a better experience! Right after we arrived, friends ran up to her and gave her a big hug and the set-up arranged for her while she’s recuperating is fantastic. Cailyn will be spending the majority of her school […]
First things first, Cailyn is recuperating nicely. She is able to manage any discomfort she is feeling with ibuprofen. I love how maturely she approaches it… “Mom, it’s uncomfortable, but it’s not unbearable!” Being home from the hospital this week, one of the pressing questions has become when will she return to school. Over the […]
It has been quite the week. Definitely more ups than downs, especially since we finished the week at home. We arrived at my parents place last night. We were both thrilled to be away from the hospital and to be treated to a lovely dinner and a full glass of wine… ok… Cailyn didn’t care […]
This is my first update via my cell phone! Cailyn’s surgery day is drawing to a close. It has been a long day, starting at 4:30 am and ending shortly. All in all, it has been a good day but she’s had a lot of work done (8 separate incisions) and she’ll likely be […]
I just got off the phone with the hospital. Cailyn’s 50th MRI at London Children’s Hospital was last Thursday and the results are in…. her tumour is STABLE!!! I am SO, SO, SO happy to get this good news the day before she’s going in for foot surgery. Obviously, with the tumour being stable, we are going to […]
Cailyn’s MRI was yesterday. It was booked before her reconstructive foot surgery so we would know whether or not her “port” could be taken out during the same surgery and she could get a break from chemotherapy! As you can imagine, we are anxiously awaiting the results! And, this is the first time in Cailyn’s 11.5 […]