Next Tuesday, we will be meeting with Cailyn’s oncologist and a radiation oncologist to gain as much information as we can about the options that are available to us for stabilizing her tumour. We are also getting the opportunity to meet with one of the neuro-radiologists who has interpreted her MRIs. It’s a weird feeling… […]
I am so thankful to have this way to communicate what I’m feeling but I’ve definitely struggled with what to write over the last couple of weeks. I am not creative enough to think of another way to express how entwined my fears and concerns for my daughter are with everyday life… and, because these fears […]
Waiting for further insight into the latest growth in Cailyn’s tumour has been a surreal experience. It feels like we’re in the eye of a storm, waiting for the wind and rain to arrive. Although the timing of this calm has been appreciated – including a long week-end to celebrate Thanksgiving with family and friends – my awareness that a […]
It’s around this time that you start thinking… “don’t they know what it feels like to wait for this kind of information??” I am so hopeful that “no news is good news”. I’m thankful that we aren’t in the place we’ve been a few times, when it was critical to get a read on the […]
It was a long day in London on Tuesday. I often feel as if I’m “hung-over” for a couple of days after a London day… Cailyn’s first scheduled appointment was an echocardiogram. The echo was scheduled for her as a result of her port surgery. The surgeon was unable to remove the “tubing” part of her port-a-cath […]
I woke up this morning and felt a sense of “oh boy, it’s Tuesday”. Tuesdays have been special days for years, but not always in a way that you’d want to celebrate! Philosophically, each day is special, but Tuesday’s claim-to-fame in our family has been that, over the last few years, it was the auspicious […]
Cailyn’s Latest Cast Cailyn had her post-surgical follow-up and cast change yesterday. Having never gone down this path before, I really didn’t know what to expect… I was definitely nervous about seeing all of the incisions!! When we first sat down in the examination room, I noticed x-rays posted on the screen. In the x-ray, I […]