Cailyn and I visited our local hospital this morning to get her assessed by the on-call pediatrician. On Tuesday, I learned that she had a pain in her left side, just above her hip. I asked her if she had felt the pain after making a specific movement, and she said “no”. She also shared that she started […]
Next Tuesday, we will be meeting with Cailyn’s oncologist and a radiation oncologist to gain as much information as we can about the options that are available to us for stabilizing her tumour. We are also getting the opportunity to meet with one of the neuro-radiologists who has interpreted her MRIs. It’s a weird feeling… […]
Waiting for further insight into the latest growth in Cailyn’s tumour has been a surreal experience. It feels like we’re in the eye of a storm, waiting for the wind and rain to arrive. Although the timing of this calm has been appreciated – including a long week-end to celebrate Thanksgiving with family and friends – my awareness that a […]
It’s around this time that you start thinking… “don’t they know what it feels like to wait for this kind of information??” I am so hopeful that “no news is good news”. I’m thankful that we aren’t in the place we’ve been a few times, when it was critical to get a read on the […]
It was a long day in London on Tuesday. I often feel as if I’m “hung-over” for a couple of days after a London day… Cailyn’s first scheduled appointment was an echocardiogram. The echo was scheduled for her as a result of her port surgery. The surgeon was unable to remove the “tubing” part of her port-a-cath […]
Yesterday morning started with a question… I got a text from my Mom asking, “Are you up?” It was a unique question and it made me wonder what was going on. I texted back “yes”. Within 10 seconds, my phone rang and I heard my Mom say, “it’s a sunny day outside but it isn’t […]