This has been a week for focusing on Cailyn’s potential. Stuffing my mind are thoughts about the potential risks to the different treatment options, and the impact of all of this craziness on Cailyn’s academic potential. I have had a headache the last few days that has been impossible to ignore. Wondering about how hard the […]
One might think, in the absence of active treatment, that life goes on as normal. There definitely are normal components to my week that can capture and hold my attention. Consuming a huge chunk of my energy, though, is a constant and undeniable awareness of this latest addition to Cailyn’s journey. This awareness colours everything… adding intensity to […]
Last Thursday I learned that Cailyn’s tumour has grown again… only six months after stopping her weekly chemotherapy. You would think that my beautiful girl could have had a longer stretch of stability, especially considering that her tumour had been stable for the four years she was on her weekly chemotherapy protocol. I am devastated […]
Yesterday morning started with a question… I got a text from my Mom asking, “Are you up?” It was a unique question and it made me wonder what was going on. I texted back “yes”. Within 10 seconds, my phone rang and I heard my Mom say, “it’s a sunny day outside but it isn’t […]
Today… hope and fear have been battling each other in my head! As the day has progressed, I’ve been keenly aware that when my head is filled with hope, there’s no room for fear, and when I’m worried, hope evaporates. Today was Cailyn’s last chemo before her foot surgery on April 5th. If the results […]