This is the seventh update I have started and I am very hopeful that I don’t get a writer’s block with this one! I have mentioned it in other entries, and it is just as true now, I am struggling these last many months to find the words that do justice to my feelings regarding […]
Today is Cailyn’s MRI. Throughout her journey and over the course of almost 60 MRIs, I have never had pre-MRI dreams in which I learn the results. Last night I did. I didn’t like the results and the emotions I felt wakened me. It took me some time to fall back to sleep as my […]
I am working on my first video… stepping into the age of vlogging… and through this exercise, I am reminded of why I write. While I was working on it, I remembered the hours following the moment I heard that my daughter had less than a year to live. Waking up in the middle of the […]
Tomorrow, Cailyn has her next MRI. We are both very hopeful we’ll learn that there is no continued growth in her tumour. If there is any further growth, her oncologist believes that the only course of action is treatment. I appreciate that we’re not out of the woods if the MRI is stable, but it’s […]
There are many, many Tuesdays over the last number of years that have involved a visit to the hospital for Cailyn and me. This last Tuesday was no different! I picked her up mid-morning from school and we headed to London for a follow-up appointment with her oncologist. We had a few conversations over the three […]
As I have mentioned a few times, this year promises to be challenging. Two imposing mountains are in my view. The most intimidating and overwhelming mountain is the growth in Cailyn’s tumour. Being Cailyn’s advocate requires me to use my project management skills. If the desired outcomes of this project weren’t so critical, the […]
An update that seems to have been forever in the making… and yet, there’s still much to be decided. It was a very long day yesterday, involving over 3-1/2 hours of meetings with three specialists about the latest growth in Cailyn’s tumour. Thankfully, my headache didn’t start until we were driving away from the hospital […]
BACK to SCHOOL!!! Well… it’s that time of year. “Back-to-school” brings a number of tasks and almost as many emotions. Where I’m concerned, my exponentially expanding to-do list is warring against my appreciation for this precious time I have with my girls… I cherish these moments that aren’t chopped into snippets of time between school, activities, and homework. Each summer provides reminders that the […]
I had my MRI yesterday and am very happy to know that my tumour is still stable. I actually asked the doctor if he was sure it hadn’t gotten smaller… and he quickly assured me, “No”. At least I tried! Walking along the corridors of the hospital where I had Gamma Knife radiation a few […]
It has been a busy few days, starting with a fantastic outing on Thursday evening with Clarky’s Kids to see “Finding Dory”. Clarky’s Kids is David Clarkson’s charity to support families with children who are treated at Grand River Hospital and who have been, or still are, dealing with cancer. It was a great break for […]