I am so very thankful for all of the support we are receiving from our circle of family and friends. I can easily state that this support is a life-line for me. Twelve years in, I am painfully aware of how effectively my resilience has been eroded by the stress I feel managing Cailyn’s health journey. I first noticed my shaky […]
One might think, in the absence of active treatment, that life goes on as normal. There definitely are normal components to my week that can capture and hold my attention. Consuming a huge chunk of my energy, though, is a constant and undeniable awareness of this latest addition to Cailyn’s journey. This awareness colours everything… adding intensity to […]
Waiting for further insight into the latest growth in Cailyn’s tumour has been a surreal experience. It feels like we’re in the eye of a storm, waiting for the wind and rain to arrive. Although the timing of this calm has been appreciated – including a long week-end to celebrate Thanksgiving with family and friends – my awareness that a […]
Last Thursday I learned that Cailyn’s tumour has grown again… only six months after stopping her weekly chemotherapy. You would think that my beautiful girl could have had a longer stretch of stability, especially considering that her tumour had been stable for the four years she was on her weekly chemotherapy protocol. I am devastated […]