I haven’t updated for a long time because I have struggled with what to write. I can’t seem to find words powerful enough to express sufficiently how deeply this journey has pushed me. When Cailyn was first diagnosed, I was told that I needed to accept that she had a chronic, life-threatening illness. Frankly, I […]
This is the seventh update I have started and I am very hopeful that I don’t get a writer’s block with this one! I have mentioned it in other entries, and it is just as true now, I am struggling these last many months to find the words that do justice to my feelings regarding […]
There are many, many Tuesdays over the last number of years that have involved a visit to the hospital for Cailyn and me. This last Tuesday was no different! I picked her up mid-morning from school and we headed to London for a follow-up appointment with her oncologist. We had a few conversations over the three […]
As I have mentioned a few times, this year promises to be challenging. Two imposing mountains are in my view. The most intimidating and overwhelming mountain is the growth in Cailyn’s tumour. Being Cailyn’s advocate requires me to use my project management skills. If the desired outcomes of this project weren’t so critical, the […]
An update that seems to have been forever in the making… and yet, there’s still much to be decided. It was a very long day yesterday, involving over 3-1/2 hours of meetings with three specialists about the latest growth in Cailyn’s tumour. Thankfully, my headache didn’t start until we were driving away from the hospital […]
My mind is so cluttered with “what ifs”, that I haven’t successfully figured out what to write. Spinning around in my head are options, feelings, and the more mundane tasks involved with our day-to-day logistics. It’s been almost 7 weeks since I learned that Cailyn’s tumour has grown and I had both hoped and expected that we would know by now […]
I am so very thankful for all of the support we are receiving from our circle of family and friends. I can easily state that this support is a life-line for me. Twelve years in, I am painfully aware of how effectively my resilience has been eroded by the stress I feel managing Cailyn’s health journey. I first noticed my shaky […]
Today we were back in London to follow-up with Cailyn’s orthopaedic surgeon. The first part of the process was getting her cast cut so she could get her foot x-rayed without the cast on. Based on Cailyn’s reactions 3 weeks ago and today, it is a process that is very ticklish 🙂 !! It’s quite […]
This is my first update via my cell phone! Cailyn’s surgery day is drawing to a close. It has been a long day, starting at 4:30 am and ending shortly. All in all, it has been a good day but she’s had a lot of work done (8 separate incisions) and she’ll likely be […]
Today… hope and fear have been battling each other in my head! As the day has progressed, I’ve been keenly aware that when my head is filled with hope, there’s no room for fear, and when I’m worried, hope evaporates. Today was Cailyn’s last chemo before her foot surgery on April 5th. If the results […]