Today has been a good day. Cailyn returned to school this morning and we couldn’t have asked for a better experience! Right after we arrived, friends ran up to her and gave her a big hug and the set-up arranged for her while she’s recuperating is fantastic. Cailyn will be spending the majority of her school […]
First things first, Cailyn is recuperating nicely. She is able to manage any discomfort she is feeling with ibuprofen. I love how maturely she approaches it… “Mom, it’s uncomfortable, but it’s not unbearable!” Being home from the hospital this week, one of the pressing questions has become when will she return to school. Over the […]
It has been quite the week. Definitely more ups than downs, especially since we finished the week at home. We arrived at my parents place last night. We were both thrilled to be away from the hospital and to be treated to a lovely dinner and a full glass of wine… ok… Cailyn didn’t care […]
This is my first update via my cell phone! Cailyn’s surgery day is drawing to a close. It has been a long day, starting at 4:30 am and ending shortly. All in all, it has been a good day but she’s had a lot of work done (8 separate incisions) and she’ll likely be […]
I just got off the phone with the hospital. Cailyn’s 50th MRI at London Children’s Hospital was last Thursday and the results are in…. her tumour is STABLE!!! I am SO, SO, SO happy to get this good news the day before she’s going in for foot surgery. Obviously, with the tumour being stable, we are going to […]
Cailyn’s MRI was yesterday. It was booked before her reconstructive foot surgery so we would know whether or not her “port” could be taken out during the same surgery and she could get a break from chemotherapy! As you can imagine, we are anxiously awaiting the results! And, this is the first time in Cailyn’s 11.5 […]
Today I went to Cailyn’s school. All the students were gathered to learn about the upcoming Relay for Life being hosted by the school. To garner support for the event, Cailyn was asked to share what it’s like to live with a life-threatening illness. I got to see her before she spoke and, although she […]
Today… hope and fear have been battling each other in my head! As the day has progressed, I’ve been keenly aware that when my head is filled with hope, there’s no room for fear, and when I’m worried, hope evaporates. Today was Cailyn’s last chemo before her foot surgery on April 5th. If the results […]
I have just had a most interesting experience with Cailyn. As her school is preparing for their “Relay for Life”, one of her friends asked her if she would speak about her journey at an assembly scheduled to get students involved in the fund-raising experience. She agreed, and immediately asked me if I would help […]
I have been asked why I feature a dragonfly on my website… Dragonflies symbolize “Hope” to me. Shortly after Cailyn’s diagnosis and first surgeries, a visiting friend noted that there was a dragonfly circling me. My friend commented that the dragonfly was bringing us good luck. I held onto that idea like a drowning person […]