We went to London twice this week.
On Monday, Cailyn had a follow-up appointment with her orthopaedic surgeon. During the appointment, Cailyn’s doctor agreed that her brace isn’t holding her foot in the right position. Specifically, her heel isn’t situated properly under her ankle. Thankfully, the fact that her foot remains supple means that a new brace might be sufficient to achieve the correct positioning… if Cailyn is diligent with her therapy! Consequently, Cailyn will be fit for a new brace before school starts and she is taking her exercises more seriously!
On Wednesday, Cailyn had her MRI. As usually happens when the time to the next MRI is dwindling, funny things were happening that inspired uncomfortable thoughts. The most significant of these “things” was four little choking spells while we were away. After the last spell, and asking her if she was okay, I observed out loud that that was the fourth time she had choked in a few days. She simply said “yep”. It’s an interesting phenomenon that many of us care-givers experience… the occurrence of “episodes”, as you get closer to a scan or test, that remind you why you want that scan or test!
Well, I am happy to share with you that I have just learned that Cailyn’s tumour has been reported to be stable. I am thrilled that her body has more time to heal and build her energy stores. There have been a few times this summer that I was acutely aware of the impact her fatigue had on her ability to really enjoy a moment.
What a great way to go into the last weeks of summer!!